Endo-ERN newsletter October 2017
 
Newsletter October 2017
 
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Steering Committee & Advisory Board meeting

On the 9th of October, 2017, Endo-ERN held its 3rd Steering Committee & Advisory Board meeting. This meeting took place in the LUMC, Leiden, The Netherlands. Most Main Thematic Group (MTG) chairs and Work Package (WP) chairs, all ePAGs, the national coordinator of France and The Netherlands, and the ESPE representative attended.

 
 
 
 
 

RD-Action Recommended Practices for Data Standardisation

  RD-Action Recommended Practices for Data Standardisation

RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable.

 
 
 
 
 

International fund raising for congenital adrenal hyperplasia

  International fund raising for congenital adrenal hyperplasia

International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).

 
 
 
 
 

October events

 
 

ERN Info Day Rome, Italy

The Italian Ministry of Health is organising and ERN information day on October 16th in Rome, Italy at the Ministry of Health. This meeting is intended to create collaboration among the Italian RCs working on the ERN.

 
 

Annual meeting International Association of National Public Health Institutes

This year’s annual meeting will be hosted by the Istituto Superiore di Sanità, Rome, Italy on October 22-25, 2017. The theme of this meeting, ‘Framing our Future’, will lead the discussion of this four-day global networking event.

 
 
 
 
 

Upcoming events