The 58th Annual ESPE Meeting will be held 19-21 September in Vienna, Austria. Continua a leggere
ESPE2019
ECE2019
The 21st European Congress of Endocrinology (ECE) will be held from the 18th until the 21st of May, 2019 in Lyon, France. Continua a leggere
December Newsletter
Read the December edition of the Endo-ERN newsletter now! Meet our new CPMS Operational helpdesk and read about the many upcoming events. Continua a leggere
4th ERN Conference Report
The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018. Continua a leggere
November Newsletter
Read the November edition of the Endo-ERN newsletter now! We report on the 4th ERN conference, update on the Clinical Patient Management System, and show a new video made by the EU commission on the functioning of the ERNs! Continua a leggere
Care for Pituitary Adenoma Leiden
The third Care for Pituitary Adenoma Leiden (CAPITAL) workshop for pituitary tumour specialists will take place on 6 and 7 June, 2019, in Leiden, the Netherlands. Continua a leggere
CPMS workshop for ERN experts
On December 6th we were at the CPMS workshop for ERN experts in Brussels, Belgium. The European Commission hosted this workshop to inform the employees of the operational help desks of the different ERNs of the functions of the CPMS and the best way to go about solving problems that might come up. Continua a leggere
3rd Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies
The 3rd Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies, a EURORDIS initiative, will be held in Brussels, Belgium, on 13 and 14 February, 2019. Continua a leggere
Report on RD-Action workshop
RD-Action published a report on the conclusions and next steps from the workshop ‘How ERNs can provide added value in the area of clinical research’. Continua a leggere
Article “Art and Science” published in Lancet Neurology
The Italian National Centre for Rare Diseases, Istituto Superiore di Sanità, recently published the article ‘Art and Science’ in the Journal Lancet Neurology Continua a leggere