Webinar series: COVID-19 and Intensive Care Medicine, 2 June 2020 at 17:00 CET

In the context of COVID-19 pandemic and launching of the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a series of webinars to support clinicians and other healthcare professionals at the frontline who treat patients with COVID-19.

The next webinar will be held by Prof. Maurizio Cecconi, President Elect of the European Society of Intensive Care Medicine and Head of Department Anaesthesia and Intensive Care Units, Humanitas Research Hospital, Lombardy in Italy, and by Prof. Jozef Kesecioglu, President of the European Society of Intensive Care Medicine, expert on ethics and intensive care, Head of Intensive Care Centre of the University Medical Centre of Utrecht in The Netherlands. Attendees will then be able to ask questions to the speakers. The webinar will be recorded and available for off line vision afterwards.

To join the webinar, click here

Programme:

Agenda:
17.00 – 17.05 

 

17.05 – 17.25

 

 

 

 

17.25 – 17.45

 

 

 

 

17.45 – 18.00

  • Welcome DG SANTE, European Commission

 

 

  • Surge ICU response and clinical aspects and management Prof. Maurizio Cecconi – President Elect of the European Society of Intensive Care Medicine and Head of Department Anaesthesia and Intensive Care Units, Humanitas Research Hospital, Lombardy, Italy

 

  • Ethics and family involvement during a pandemic.

Prof. Jozef Kesecioglu – President of the European Society of Intensive Care Medicine; Expert on ethics and intensive care, Head of Intensive Care Centre of the University Medical Centre of Utrecht, Netherlands

 

  • Q&A

 

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Recorded Webinar: COVID-19 & Endocrine conditions with increased risk – Endo-ERN

On May 12th 2020, a successful Endo-ERN webinar about COVID-19 & Endocrine conditions with increased risk was organized. The webinar was chaired by coordinator of Endo-ERN Prof. Alberto Pereira, Prof. Eelco de Koning, both from Leiden University Medical Center in the Netherlands and by ProfWiebke Arlt from University of Birmingham in the UK.

The recording of this webinar and presentations are published on the website of the European Commission. View the recording and presentations here.

For an overview of all previously organized & upcoming scheduled Endo-ERN webinars, click here.

Questo articolo è stata postato il Generale.

Webinar: COVID-19: Endocrine conditions with increased risk – Endo-ERN

In the context of COVID-19 pandemic and launching of the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a series of webinars to support clinicians and other healthcare professionals at the frontline who treat patients with COVID-19.

Feel free to forward this invitation to any other colleague that might be interested in the topic.

We would like to invite you to the webinar that will take place on:

Tuesday 12 May at 18.00 CET

6th Webinar: ‘COVID-19: Endocrine conditions with increased risk Endo-ERN’

The webinar will be held by Prof. Alberto Pereira, Coordinator of Endo-ERN, from Leiden University Medical Center in the Netherlands, by Prof. Eelco de Koning  from Leiden University Medical Center in the Netherlands and by Prof. Wiebke Arlt from University of Birmingham in the UK.

Attendees will then be able to ask questions to the speakers.

Given the high number of participants, we would like to kindly ask you to consider downloading the app (linked below) or to use computers combined with phone conference systems. Please, if possible avoid using landlines.  Attached you will find a brief explanation on how to access the Webinar.

Agenda:

18:00 – 18:05 Welcome DG SANTE, European Commission

18:05 – 18:10 Introduction and overall view

Prof. Alberto Pereira (Leiden University Medical Center – Coordinator of Endo-ERN)

18:10 – 18:25 Type of diabetes and risk for COVID-19

Prof. Eelco de Koning (Leiden University Medical Center)

18:25 – 18:35 Q&A

18:35 – 18:50 COVID-19 and the Management of Adrenal insufficiency

Prof. Wiebke Arlt (University of Birmingham)

18:50 – 19:00 Q&A

ESE and Endo-ERN launch an initiative to collect data on patients with rare endocrine conditions and COVID-19

The ESE Rare Disease Committee, alongside Endo-ERN, have engaged in an initiative to collect data concerning specific groups of patients with rare endocrine conditions, who are also affected by COVID-19. We believe this is a global unmet need and requires swift, concerted and coordinated action.

The European Registries for Rare Endocrine Conditions (EuRRECa) project, supported by both Endo-ERN and ESE, has developed an e-reporting tool (e-REC) which has been fully operational for over a year within a robust governance and ethical framework and which does not require individual patient consent. The platform is now open to all centres across the world to report a new confirmed or suspected case of COVID-19 in a patient with an existing endocrine or metabolic bone condition.

We would like to encourage you to join us in this important initiative by registering on the e-REC platform and begin submitting data. If you would like to use the e-REC platform to report a new COVID-19 infection in a patient with an existing condition, please visit the e-REC platform and create an account.

If you are already an active user of e-REC, then, after login, you will need to revise your reporting set up.

You can find out more about the functionality of e-REC in this recent report. If you need any assistance, please email the EuRRECa team at info@eurreca.net.

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ECRD 2020 Online 14-15 May

In the context of the current COVID-19 pandemic, the upcoming European Conference on Rare Diseases & Orphan Products (ECRD) will take place ONLINE on 14-15 May.

The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

The ECRD 2020 theme “The rare disease patient journey in 2030” recognises that the next decade holds great potential for improvement and that while we cannot predict the future, we all have a role in preparing for it. See the full ECRD programme built around the six parallel themes.

Register via this link. Deadline for registration is May 1st.

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New Endo-ERN manuscript accepted for publication in European Journal of Endocrinology

We are proud to announce that the manuscript from Work Package 5 “Diagnostics & laboratory analysis” in collaboration with EU COST action, entitled “Peptide Hormone Analysis in Diagnosis and Treatment of Differences of Sex Development: Joint Position Paper of EU COST Action “DSDnet” and European Reference Network on Rare Endocrine Conditions” has been accepted for publication in European Journal of Endocrinology.

To view the publication, click here.

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Endo-ERN webinar : Update on congenital adrenal hyperplasia

On Monday March 23rd at 14:00 – 15:00 CET an Endo-ERN webinar about “Update on congenital adrenal hyperplasia” is organised.

The webinar will be held by Prof. Dr. med. Nicole Reisch, Ludwig-Maximilian-University Munich, Germany.

Webinar riepilogo

WebinarEndo-ERN webinar : Update on congenital adrenal hyperplasia
Data23 Marzo - 23 Marzo 2020
RegistrazioneRegistrati per questo webinar

EuRRECa Project Group Meeting Webinar

Following the necessary cancellation of the face-to-face meeting of the EuRRECa Project Group in Verbania, we are pleased to inform you that a Webinar is being arranged as an alternative on the same date.Monday 9 March 2020

The meeting will begin at 10:50 and finish at 13:10 (CET).

The PGB meeting which will be held after the Project Group meeting.