Endo-ERN webinar : Turner Syndrome Guideline & the patient perspective

On Thursday February 13th at 15:00 – 16:00 CET an Endo-ERN webinar about “Turner Syndrome Guideline & the patient perspective” is organised.

The webinar will be held by Prof. Claus Gravholt, MD, PhD, Aarhus University Hospital Denmark and Arlene Smyth, mother of a patient, Executive Officer of the Turner Syndrome Support Society and Endo-ERN patient representative.

Claus Gravholt will give a short description of the new international guideline concerning health and general follow-up of adult women with Turner syndrome. He will focus on the medical health issues, as well as the neurocognitive challenges that many women with TS face during adulthood and about the need for centralized care in all countries, as well as the interdisciplinarity which is needed. Furthermore, Arlene Smyth will be sharing the patient perspective side.