The first call for new members to join existing 24 ERNs is open until 30 November 2019.
For more information click here
Endo-ERN website is now available in Spanish and Portuguese
We proudly announce that our Endo-ERN website is now available in Spanish and Portuguese.
This way, we hope to reach more patients, caretakers, medical specialists etc. closely involved in the field of rare endocrine conditions, all over Europe, all over the world.
Other languages will follow soon!
Rare endocrine diseases Padova meeting
On June 7th 2019, in the old Venetian villa Contarini in Piazzola sul Brenta owing to the Venetian Region Counsil, the Endocrinology Unit of Azienda Ospedaliera-University of Padova (director Carla Scaroni, MD ) organized for Endo ERN group of Padova a meeting dedicated to medical doctors involved in child- and adult-hood endocrine rare diseases.
The aim of the meeting was to ameliorate the network among different care centers in our territory to uniform the standards of diagnosis and therapy for rare disease patients. Continuar leyendo
International Rare Diseases Research Consortium
The knowledge of a raredisease is often spread throughout the world. That is why LUMC Leiden is a participant in Irdirc, a consortium with more than 40 member organizations from all over the world. In this video Prof. Aartsma-Rus explains how exactly they work together.
Steering Committee & Advisory Board Meeting at ESPE2019
The next Endo-ERN Steering Committee & Advisory Board meeting is going to held on Friday September 20th, 2019 from 13:00 – 14:30 and from 16:30 – 17:30 hrs in Vienna, at the ESPE congress venue. Continuar leyendo
ERNs newsletter
The first common newsletter about all ERNs has been published by DG Health and Food Safety.
Subscribe here for the newsletter
June newsletter
Read the June edition of the Endo-ERN newsletter now! The ESPE2019 ERN symposium program is available , first common newsletter about all ERNs , talk about meetings, and much more!
Click here for the newsletter
Brexit
Updated information about the impact of BREXIT on access to IT tools and CPMS was presented by the European Commission during the 8th ERN Coordinators Group Meeting on Monday June 24th in Brussels. Please click here for the full presentation
CAPITAL IV
In the context of protecting both patients and employees against the risk of the further spread of the coronavirus (COVID-19), the course directors, has decided to cancel the Care for Pituitary Adenoma Course 2020.
About the workshop:
CAPITAL aims to be a forum for pituitary experts of all backgrounds, to exchange thoughts and ideas beyond the guidelines. The focus is clinical and practical. Typically, we choose topics that are of interest for multidisciplinary teams, and are generally not discussed in monodisciplinary conferences. We are excited that the world-leading experts that formed the faculty of the first edition are keen to participate again.
CAPITAL is a workshop, not a conference. We stimulate interaction, discussion, case presentations, and ask you to challenge the current standard of care. This inspiring interaction between faculty and participants and the shared fascination for high standard pituitary care are the main drivers of the success of our workshop.
Event Resumen
| Event | CAPITAL IV |
| Fecha | 4 junio - junio 5th, 2020 |
| Ubicación | Leiden, The Netherlands |
| Sitio web | Visitar event sitio web |
Endo-ERN MTG3 Webinar: Hyperinsulinism
On Monday 1st of July 2019,
the 1st Endo-ERN MTG3 webinar will be held from 10:00-11:00 CET Continuar leyendo