Bone Curriculum Symposium and the Pre-Symposium on Rare Bone Diseases

The Bone Curriculum Symposium is a continuous structured educational lecture cycle on bone. It includes bone biology, physiology, pathophysiology, calcium and phosphate metabolism and covers bone, calcium and phosphate disorders, osteoporosis, diagnosis, management and treatment.

Furthermore, interactions of the skeleton with other organ systems are addressed. A full Bone Curriculum lecture cycle is covered by three consecutive yearly symposia. Participants of three symposia are accredited the Bone Curriculum Course Certificate. The intention of the Bone Curriculum is to provide high quality continuous education for clinicians interested in, seeing or treating patients with osteoporosis or bone diseases and is a structured educational programme for rheumatology and other bone-interested medical trainees.

In this context, the lectures mainly cover up-to-date basic knowledge, overviews and reviews. The Pre-symposium course on Rare Bone Diseases intends to spread general information on rare bone, calcium and phosphate disorders to second-line clinicians and to be an educational platform for trainees and future bone specialists. One of its final goals is to increase knowledge and awareness about these disorders and consequently to shorten and improve the diagnostic journey of patients with rare diseases and their access to specialised care.

Symposium Resumen

SymposiumBone Curriculum Symposium and the Pre-Symposium on Rare Bone Diseases
Fecha21 octubre - octubre 22nd, 2021
UbicaciónGhent, Belgium
OrganizaciónKBVR / SRBR Osteoporosis and Fracture Prevention Group
Sitio webVisitar symposium sitio web
RegistroEl registro está cerrado

Adrenal masterclass 2022

The Radboudumc Adrenal Masterclass presents state of the art lectures and workshops on clinical and pathophysiological aspects of adrenal diseases. It serves an audience of adult and pediatric endocrinologists, clinical fellows, internists and clinical chemists who are involved in the management of patients with adrenal disease.

The duration of the masterclass is 4,5 days, from Monday to Friday. Many national and international experts contribute to an intensive program that encompasses all major adrenal disorders: hyper- and hypocortisolism, congenital adrenal hyperplasia, incidentaloma, adrenocortical cancer, pheochromocytoma/ paraganglioma and primary aldosteronism. Apart from overview lectures on theoretical and practical issues, there will be interactive sessions on patient cases with challenging diagnostic and therapeutic issues. Participants are encouraged to present their own cases.

Special attention will be paid to indications and interpretation of testing, including imaging procedures. In addition, essential and practical methodological aspects of specific procedures such as adrenal venous sampling and minimally invasive adrenal surgery are demonstrated and discussed.

Event Resumen

EventAdrenal masterclass 2022
Fecha24 enero - enero 28th, 2022
UbicaciónNijmegen, Netherlands
OrganizaciónRadboud UMC
Sitio webVisitar event sitio web
RegistroRegister for event

ESPE science symposium online

The ESPE science symposium aims to promote the development of an interactive network between clinicians and researchers, helping to reduce the gap between research and patient care. It will also provide the means to disseminate new scientific knowledge in the community of paediatric endocrinology. The symposium is organized every two years by a Local Organizing Committee (LOC) selected through an application process by the ESPE Science Committee.

Its focus will be ‘Congenital adrenal hyperplasia: from molecular medical research to clinical application’ and it will be supported by the Endo-ERN and the ESPE DSD Working Group.

The symposium will consist of interactive lectures by renowned scientists in the field with the aim of covering the main topics in CAH. We invited top clinical and basic researchers from all over the world with main research focus on CAH. There will also be discussions and networking time in the group.

Symposium Resumen

SymposiumESPE science symposium online
Fecha29 octubre - octubre 30th, 2021
UbicaciónOnline
Sitio webVisitar symposium sitio web
RegistroRegister for symposium

EJP RD ERN Research Training Workshop Call

The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full  Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value.

The workshops will be delivered as two-day events. The costs for the workshop organization will be covered up to a limit of €25.000 (venue, administrative, audio-visual and IT facilities essential for the workshop, catering, travel and accommodation expenses of workshops participants and invited speakers, if envisaged).

The workshops selected for funding will be attended only by individuals affiliated to ERN institutions. Participants will be selected by the coordinator of the ERN managing institution and the workshop organizer based on pre-defined criteria.

Organizer’s profile: 

The applicant submitting workshop topics must fulfil one of the following conditions:

  • Affiliated to any EJP RD beneficiary institution
  • Affiliated to an ERN Full Member
  • Affiliated to an ERN Affiliated Partner institution at the time when the application is submitted, as well as during the period of the execution of the workshop.

Application and more information here.

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Endo-ERN symposium: Growth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care

On Tuesday November 16th at 14:00 – 17:00 CET an Endo-ERN symposium with multiple speakers within the main thematic group of Growth & Genetic Obesity Syndromes is organised.

Program:

Prader Willi Syndrome (PWS) Clinical management of transition of care

2:00 – 2:30 Introduction – PWS as a model of hypothalamic obesity (Maithé Tauber- FR)

2:30 – 3:00 PWS and transition of care – focus on psychology (Tony Holland – UK)

3:00 – 3:45 PWS and transition of care – endocrine care of the young adults
Adrenal insufficiency and hypogonadism (Laura De Graaff – NL)
Growth hormone treatment (Charlotte Højbye – SE)

3:45 – 4:00 Break

4:00 – 4:20 Coordination of transition and management of transitional care for patients with rare endocrine disorders (Christine Poitou + coordinator)

4:20 – 4:50 Patient’s view on PWS and transition of care
The parent’s view (Berit Otterlei – NO)
The patient’s view (tbc)

4:50 – 5:00 Concluding remarks (Christine Poitou and Maithé Tauber)

Webinar Resumen

WebinarGrowth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care
Fechanoviembre 16th, 2021
Time14:00 – 17:00 hr
SpeakersMaithe Tauber
Tony Holland
Laura de Graaff
Charlotte Höybye
Christine Poitou
Berit Otterlei
RegistroRegister for webinar
MTG

Endo-ERN webinar: Overgrowth syndromes Beckwith Wiedemann syndrome and other rare conditions

On Tuesday September 7th at 17:00 – 18:00 CET an Endo-ERN webinar about  “Overgrowth syndromes: Beckwith Wiedemann syndrome and other rare conditions” will be given by Frédéric Brioude from Hôpital Armand-Trousseau in France.

Overgrowth syndromes are a heterogeneous group of rare disorders characterized by generalized or segmental excessive growth, that can be associated with other features, including macrocephaly or cognitive impairment. These syndromes are caused by either genetic or epigenetic anomalies affecting factors involved in cell proliferation and/or the regulation of epigenetic markers. Overgrowth syndromes are frequently associated with an increased risk of cancer (embryonic tumours during infancy or carcinomas during adulthood), but with a highly variable prevalence, leading to the establishment of screening programs for tumors for some of these rare diseases. Continuar leyendo

Vacancies: Phd positions – Better estimates of hormonal exposure to improve diagnosis and treatment in endocrine diseases (BEED-ED)

Are you interested in improving hormone measurements and implement your research findings into clinical practice?

In a joint research project, the departments of Endocrinology at Ghent University and KU Leuven are currently hiring two enthusiastic and highly motivated PhD researchers to participate in our new research project “Better estimates of hormonal exposure to improve diagnosis and treatment in endocrine diseases”. This project is funded by the TBM program of FWO Vlaanderen (Applied Biomedical Research with primary social finality) for a period of 4 years and will start October, 1st 2021. Continuar leyendo

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