Read the February-March edition of the Endo-ERN newsletter now! It features a report on our third annual General Assembly, the first EndoRARE webinar, past meetings, and upcoming meetings! Continuar leyendo
Read more about the upcoming webinars & recordings, the first Endo-ERN Clinical Exchange program participant, EJP RD ERN Research Training Workshops Funding Opportunity and much more!
The Bone Curriculum Symposium is a continuous structured educational lecture cycle on bone. It includes bone biology, physiology, pathophysiology, calcium and phosphate metabolism and covers bone, calcium and phosphate disorders, osteoporosis, diagnosis, management and treatment.
Furthermore, interactions of the skeleton with other organ systems are addressed. A full Bone Curriculum lecture cycle is covered by three consecutive yearly symposia. Participants of three symposia are accredited the Bone Curriculum Course Certificate. The intention of the Bone Curriculum is to provide high quality continuous education for clinicians interested in, seeing or treating patients with osteoporosis or bone diseases and is a structured educational programme for rheumatology and other bone-interested medical trainees.
In this context, the lectures mainly cover up-to-date basic knowledge, overviews and reviews. The Pre-symposium course on Rare Bone Diseases intends to spread general information on rare bone, calcium and phosphate disorders to second-line clinicians and to be an educational platform for trainees and future bone specialists. One of its final goals is to increase knowledge and awareness about these disorders and consequently to shorten and improve the diagnostic journey of patients with rare diseases and their access to specialised care.
|Symposium||Bone Curriculum Symposium and the Pre-Symposium on Rare Bone Diseases|
|Fecha||21 octubre - octubre 22nd, 2021|
|Organización||KBVR / SRBR Osteoporosis and Fracture Prevention Group|
|Sitio web||Visitar symposium sitio web|
The Radboudumc Adrenal Masterclass presents state of the art lectures and workshops on clinical and pathophysiological aspects of adrenal diseases. It serves an audience of adult and pediatric endocrinologists, clinical fellows, internists and clinical chemists who are involved in the management of patients with adrenal disease.
The duration of the masterclass is 4,5 days, from Monday to Friday. Many national and international experts contribute to an intensive program that encompasses all major adrenal disorders: hyper- and hypocortisolism, congenital adrenal hyperplasia, incidentaloma, adrenocortical cancer, pheochromocytoma/ paraganglioma and primary aldosteronism. Apart from overview lectures on theoretical and practical issues, there will be interactive sessions on patient cases with challenging diagnostic and therapeutic issues. Participants are encouraged to present their own cases.
Special attention will be paid to indications and interpretation of testing, including imaging procedures. In addition, essential and practical methodological aspects of specific procedures such as adrenal venous sampling and minimally invasive adrenal surgery are demonstrated and discussed.
The ESPE science symposium aims to promote the development of an interactive network between clinicians and researchers, helping to reduce the gap between research and patient care. It will also provide the means to disseminate new scientific knowledge in the community of paediatric endocrinology. The symposium is organized every two years by a Local Organizing Committee (LOC) selected through an application process by the ESPE Science Committee.
Its focus will be ‘Congenital adrenal hyperplasia: from molecular medical research to clinical application’ and it will be supported by the Endo-ERN and the ESPE DSD Working Group.
The symposium will consist of interactive lectures by renowned scientists in the field with the aim of covering the main topics in CAH. We invited top clinical and basic researchers from all over the world with main research focus on CAH. There will also be discussions and networking time in the group.
The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value.
The workshops will be delivered as two-day events. The costs for the workshop organization will be covered up to a limit of €25.000 (venue, administrative, audio-visual and IT facilities essential for the workshop, catering, travel and accommodation expenses of workshops participants and invited speakers, if envisaged).
The workshops selected for funding will be attended only by individuals affiliated to ERN institutions. Participants will be selected by the coordinator of the ERN managing institution and the workshop organizer based on pre-defined criteria.
The applicant submitting workshop topics must fulfil one of the following conditions:
- Affiliated to any EJP RD beneficiary institution
- Affiliated to an ERN Full Member
- Affiliated to an ERN Affiliated Partner institution at the time when the application is submitted, as well as during the period of the execution of the workshop.
Application and more information here.
On Tuesday November 16th at 14:00 – 17:00 CET an Endo-ERN symposium with multiple speakers within the main thematic group of Growth & Genetic Obesity Syndromes is organised.
Prader Willi Syndrome (PWS) Clinical management of transition of care
2:00 – 2:30 Introduction – PWS as a model of hypothalamic obesity (Maithé Tauber- FR)
2:30 – 3:00 PWS and transition of care – focus on psychology (Tony Holland – UK)
3:00 – 3:45
PWS and transition of care – endocrine care of the young adults
Adrenal insufficiency and hypogonadism (Laura De Graaff – NL)
Growth hormone treatment (Charlotte Højbye – SE)
3:45 – 4:00 Break
4:00 – 4:20 Coordination of transition and management of transitional care for patients with rare endocrine disorders (Christine Poitou + coordinator)
4:20 – 4:50
Patient’s view on PWS and transition of care
The parent’s view (Berit Otterlei – NO)
The patient’s view (tbc)
4:50 – 5:00 Concluding remarks (Christine Poitou and Maithé Tauber)
|Webinar||Growth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care|
|Fecha||noviembre 16th, 2021|
|Time||14:00 – 17:00 hr|
|Speakers||Maithe TauberTony Holland Laura de GraaffCharlotte HöybyeChristine Poitou|
On Tuesday September 7th at 17:00 – 18:00 CET an Endo-ERN webinar about “Overgrowth syndromes: Beckwith Wiedemann syndrome and other rare conditions” will be given by Frédéric Brioude from Hôpital Armand-Trousseau in France.
Overgrowth syndromes are a heterogeneous group of rare disorders characterized by generalized or segmental excessive growth, that can be associated with other features, including macrocephaly or cognitive impairment. These syndromes are caused by either genetic or epigenetic anomalies affecting factors involved in cell proliferation and/or the regulation of epigenetic markers. Overgrowth syndromes are frequently associated with an increased risk of cancer (embryonic tumours during infancy or carcinomas during adulthood), but with a highly variable prevalence, leading to the establishment of screening programs for tumors for some of these rare diseases. Continuar leyendo
Are you interested in improving hormone measurements and implement your research findings into clinical practice?
In a joint research project, the departments of Endocrinology at Ghent University and KU Leuven are currently hiring two enthusiastic and highly motivated PhD researchers to participate in our new research project “Better estimates of hormonal exposure to improve diagnosis and treatment in endocrine diseases”. This project is funded by the TBM program of FWO Vlaanderen (Applied Biomedical Research with primary social finality) for a period of 4 years and will start October, 1st 2021. Continuar leyendo
Read more about the Endo-ERN symposium at ESPE online, upcoming webinar & recordings, the ERN Exchange programme newsletter and much more!