UPDATE: EuRRECa/EuRR-Bone

eurreca-eurrbone

Mark your calendar and save the date!

Monday, April 3, 2023

  • The 1st Joint EuRRECa and EuRR-Bone meeting will take place in the morning at Leiden University Medical Centre, the day before Endo-ERN General Assembly. Click here to register and see the programme here.
  • Faisal Ahmed’s Inaugural Lecture will take place during the afternoon at Universiteit Leiden.

Past event report Oct 2022

ERICA – ERN Data Management Strategy Multistakeholder Workshop, Heidelberg

This workshop included discussions aimed at helping ERNs in setting up, maintaining and improving their registries. The valuable face-to-face interaction, not possible during the recent period, facilitated collaborative information sharing with other registries. EuRRECa and EuRR-Bone were represented at this event.

NEW disease specific module

  • The study group on Genetic Obesity has developed a disease specific dataset which is now available in the Core Registry and collecting data on syndromic and non-syndromic genetic obesity.

Want to learn more about registries?

  • Drop in sessions are available for anyone who is interested in learning more about the EuRRECa/EuRR-Bone platforms (e-REC and Core Registry) can join by Zoom.
  • No need to register for the session, just come along using this link!
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