On Monday November 20th, 2017 the first version of the Clinical Patient Management System (CPMS) went live.
The International Workshop of Sex Development and Maturation will take place on 23 – 24 February, 2018, in Lübeck, Germany.
The Translational Science of Rare Diseases – From Rare to Care III symposium, hosted by the BMBF-funded German Research for Rare network, will take place from April 11 to 13, 2018 in Tutzing.
On November 4th, 2017, EU commissioner Dr. Vitenyis Andriukatis was in Milan to attend the G7 health forum and led a discussion on the future of health, big data, articial intelligence, and potential benefits to patients.
Read the Endo-ERN Newsletter October 2017 now for information on events, meetings, and much more.
The next Endo-ERN Steering Committee meeting will be held on the 14th of December, from 14:00 until 16:00 via WebEx.
On the 9th of October, 2017, Endo-ERN held its 3rd Steering Committee & Advisory Board meeting. This meeting took place in the LUMC, Leiden, The Netherlands. Most Main Thematic Group (MTG) chairs and Work Package (WP) chairs, all ePAGs, the national coordinator of France and The Netherlands, and the ESPE representative attended.
RD-ACTION & DG Sante Workshop are holding a workshop for ERNs on December 6-7, in Rome, Italy.
International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).
RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable.