Endo-ERN will present a poster at the European Conference on Rare Diseases and Orphan products. The poster will be presented by our European Patient Advocacy Group patient representatives Johan de Graaf, Petra Brügmann, and Diana Vitali. Pokračovat ve čtení
Endo-ERN will be actively present at ECE2018! On Tuesday the 22nd of May a special Endo-ERN Symposium will take place from 9:45 until 10:45 and you will be able to find us at our own exhibition stand, together with EuRRECa (The European Registry for Rare Endocrine Conditions), for the whole duration of the congress. Pokračovat ve čtení
The European Commission has released a press release looking back on Rare Diseases day and celebrating the 1-year anniversary of ERNs Pokračovat ve čtení
The CPMS webinar schedule for April 2018. We encourage all Endo-ERN members to participate.
The next Endo-ERN steering committee & advisory board meeting will take place on the 20th of May, 2018 from 13:00 – 15:30 at the ECE2018 in Barcelona, Spain. Pokračovat ve čtení
Read the Endo-ERN February newsletter now! This past month we held our second General Assembly, the ERN coordinators wrote a position statement on the state of the UK in ERNs, and we recieved information on a new audit coming from the European Commission. Read the complete newsletter to find out more. Pokračovat ve čtení
On the 22nd of February, 2018, the second Endo-ERN General Assembly took place in Lübeck, Germany. Little under one hundred participants gathered in Lübeck for the General Assembly on the 22nd of February. Representatives of the Endo-ERN member Reference Centers, Patient Representatives, National Coordinators, representatives of ESE and ESPE, and other specifically interested persons attended. Pokračovat ve čtení
The Network Coordinators of the 24 European Reference Networks have written a position statement on the future involvement of the United Kingdom within ERNs. In this paper the ERN coordinators highlight the importance of the UK’s continuous involvement in ERNs. Pokračovat ve čtení
The CPMS webinar schedule for March 2018. We encourage all Endo-ERN members to participate.
Our application for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2) has recently been recommended for funding, along with the other ERNs! Pokračovat ve čtení