Endo-ERN Newsletter January 2021 ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌
 
January 2021
 
 
 
 
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Endo-ERN webinar: Endocrine and bone management in Duchenne muscular dystrophy

On Tuesday March 2nd at 17:00 – 18:00 CET an Endo-ERN webinar about “Molecular diagnostic testing of imprinting disorders and related growth disturbances” is organised. The Endo-ERN webinar will be held by Prof Thomas Eggermann from University Hospital Aachen, Germany.

 

 
 
 
 
 
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CPMS webinar

On Tuesday February 23rd at 17:00 CET an Endo-ERN CPMS webinar about “how to enroll a patient, start a panel and upload files to your panel” is organised. Danielle Steenvoorden from our Operational Helpdesk will give you a live demonstration in CPMS Training Environment followed by a live personal Q&A opportunity.

 
 
 
 
 

Recording Endo-ERN webinars

The recording of MTG2 webinar about “Endocrine and bone management in Duchenne muscular dystrophy” and the CPMS webinar "How to invite members to your panel, schedule a video meeting and join a video meeting" are now available for viewing at your own convenience.

 
 
 
 
 

Special supplemental issue on Rare Endocrine Conditions

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The European Reference Network on Rare Endocrine Conditions together with the Journal Endocrine will release a special supplemental issue on rare endocrine conditions, which shall be released on Rare Disease Day 28 February 2021

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eECE2021
 

Endo-ERN at e-ECE 2021

The annual meeting of the European Society of Endocrinology will be again held online.

Endo-ERN will be present with:

  • A joint symposium together with the ESE-RD committee on Wednesday May 26th from 10:30 – 12:00 CET
  • Virtual booth where informational materials, newsletters and posters will be available for all participants
 
 
 
 
 
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Newsletter EuRRECa

The first newsletter of 2021 is out now! Read more about:

  • e-reporting of rare conditions through e-REC
  • Collecting a core dataset for a wide range of endocrine and bone conditions
  • Identification of core outcomes that can be collected as part of routine practice
  • Promotion of high-quality detailed disease registries
 
 
 
 
 

Endo-ERN Covid-19-webpage

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Endo-ERN has created a page dedicated to Covid-19, especially for patients with rare endocrine conditions who need information, and clinicians treating COVID-19 patients with rare endocrine conditions.

This page is continuously updated with the most relevant information from EU countries and European initiatives and now including with an update on the COVID vaccination program, priorities for specific patients with rare diseases.

 
 
 
 
 

Upcoming events