On May 18-19th, 2018, the European Academy of Pediatrics Spring Meeting was held in Sofia, Bulgaria as part of the initiatives during the Bulgarian Presidency of the Council of the European Union. Endo-ERN was represented at this meeting and discussed potential future collaboration options. Продължаване на четенето на
On the 14th of June from 15:00-16:00, our Endo-ERN operational helpdesk is hosting the second of our CPMS Webinar sessions for all Endo-ERN reference center representatives to attend, via the WebEx system.
On the 12th of June, from 15:00-16:00, our Endo-ERN operational helpdesk is hosting the first of 2 CPMS Webinar sessions for all Endo-ERN reference center representatives to attend, via the WebEx system. Продължаване на четенето на
The fourth Italian Endo-ERN meeting will be held on the 7th of June, in Padova, Italy. Продължаване на четенето на
Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a video on CPMS, and much more! Продължаване на четенето на
The Endo-ERN General Assembly 2019 will be held on the 12th of March, 2019, in Budapest, Hungary! Продължаване на четенето на
EuRRECa was present at the Rare Disease Registries Projects kick-off meeting in Luxembourg on 17th April. Продължаване на четенето на
The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS). Продължаване на четенето на
Fibrous dysplasia of bone: a good example of multidisciplinary expert care bridging Endo-ERN with BOND. Продължаване на четенето на
Read the Endo-ERN March newsletter now! This edition contains an EU press release on Rare Diseases day and the 1 year anniversary of ERNs, announcement of an Endo-ERN and EuRRECa stand at ECE2018, Poster presentation at ECRD and much more! Продължаване на четенето на