Current Projects


Endo-ERN activities are defined in five work packages throughout different phases. Phase 1 entails survey, evaluation and strategic planning; phase 2 involves the stepwise execution / implementation of the planning; phase 3 wraps up the implementation and works towards producing guidelines and the establishment of a network that can be sustained beyond the five-year plan.

The Endo-ERN Activities can be divided in three groups:

Current Projects


The Clinical Patient Management System (CPMS) is a secure web-based application to support European Reference Networks in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders.

CEF Call

The Connecting European Facility (CEF) is a funding programme of the Europe 2020 Strategy in the sectors of transport, energy and telecommunications. Endo-ERN applied for the specific eHealth Digital Service infrastructure within the telecom call.


European Registries for Rare Endocrine Conditions (EuRRECa)is aimed at maximising the opportunity to participate and use high quality, patient-centered registries for rare endocrine conditions