Future call

The first ERNs were launched in March 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States. The 24 established networks are now developing their joint activities on rare and complex diseases. Once this structure has been put into place the opportunity is expected to arise to create more ERNs and for HCPs to join existing ERNs.
 

  • A call for healthcare providers to join existing networks is expected to be opened in the first semester of 2018.
  • A call for new ERNs should be launched in the incoming years, but it is not expected before 2019.

 

Any updates regarding a future call for both ERNs and HCPs will be posted on DG Sante ERN and on the Endo-ERN website.

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Endo-ERN is on Twitter

Endo-ERN is now on Twitter

The Twitter page for Endo-ERN is online.

 
Follow the page to stay updated on news regarding ERNs, Endo-ERN, Paediatric and Adult Endocrinology, meetings and workshops, and much more.

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Video reportages European Reference Networks

After a successful launch of the European Reference Networks earlier this year, the 24 established networks are now developing their joint activities on rare and complex diseases. The added value for patients and their families will become visible in the coming months.

To illustrate the potential of the ERNs the European Commission has produced four video reportages, with real-life case studies: of an Italian patient with bone disorders, a Dutch heart patient, a Spanish girl who underwent a transplantation and a French representative of kidney patients. Telling their personal stories, we can show different aspects of the ERNs. A fifth, longer video reportage, brings the full story of the European Reference Networks, with the views of doctors, patients and European Commissioner Vytenis Andriukaitis.

Watch the videos

Ombudsman announces Award for Good Administration winners

The European Ombudsman, Emily O’Reilly, celebrated the range and quality of the nominations for the Award for Good Administration in a ceremony in Brussels on Thursday.

Launched in October, the Award attracted 90 nominated projects from the main EU institutions as well as many agencies and other bodies.

Prizes were awarded in 7 categories with the overall Award for Good Administration 2017 going to the Commission’s DG Health whose nominated unit developed EU collaboration in the sharing of vital information and expertise to help millions of Europeans suffering from rare diseases. Continue reading

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Symposium on the Calcium Sensing Receptor (CaSR)

The 3rd international symposium on the Calcium Sensing Receptor (CaSR) will take place from May 11th to May 13th in Florance, Italy.

The symposium will bring together basic, translational and clinical scientists from different disciplines who study the molecular biology, physiology, and pathophysiology of the CaSR and clinical disorders of CaSR function. Continue reading

3rd DSDnet Training School 2017

The 3rd DSDnet Training School will take place from September 28th to September 30th in Budapest, Hungary as a postgraduate level course. The DSDnet Training School 2017 is under the topic: “Promoting Research in DSD”.

The Training School is aimed at Professionals from COST Countries in their early stages of career, from a medical or a scientific background. Continue reading

Newsletter April 2017: The first General Assembly

The European Reference Networks for rare and complex diseases (ERNs) were officially installed on 9 March 2017 at the 3rd conference on Rare diseases in Vilnius, Lithuania. The first General Assembly (GA) of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) was held on Monday 27 March 2017, in Leiden, The Netherlands.

The purpose of this first annual meeting was first to inform and update all members and other stakeholders on the mission, structure, and governance of Endo-ERN, and subsequently to approve the current application by the members via voting in order to be officially operational, and finally to attain contribution of each Health Care Provider (HCP) to the pre-defined deliverables, as specified in the grant application. Continue reading

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